From the day Jessica DeDio learned her son’s kidneys would one day fail due to a rare disease he was…
Read More
Texas girl with rare genetic disorder raises $13G for hospital that helped her gain mobility
When Addie Bryan was diagnosed with a rare genetic disorder at birth, doctors never thought she would be able to…
Read More
Mystery illness robbing 4 siblings of ability to walk
In elementary school, Rivka Herzfeld usually placed last during races in gym class, but she never thought much about her…
Read More
Toddler born without a tibia thriving after receiving prosthetic leg
Two days after their son’s birth, Michael and Sally Lynick faced a tough choice: have doctors amputate little Vincent’s leg…
Read More
Ohio family who moved to Colorado finds relief for daughter’s seizures with medical marijuana
The Ohio family who moved more than 1,000 miles away to Colorado so their daughter who suffered up to 1,000…
Read More
Woman with rare disease debuts film at SXSW
Lizzie Velasquez was born with a rare condition that left her teased and cyberbullied as an adult. Now, she’s made…
Read More
1-year-old battling rare bone disorder dies despite life-saving operation
An Argentinean 1-year-old whose parents brought her to the United States for what they hoped would be a life-saving operation…
Read More
Kindergarten teacher donates kidney to former student
A Connecticut woman who has suffered from chronic kidney problems since birth has a new lease on life thanks to…
Read More
Georgia girl recovering after receiving life-saving bone marrow transplant from sister
A Georgia 4-year-old is recovering after receiving a life-saving bone marrow transplant from one of her three sisters. Angelique Walker,…
Read MoreHepatitis C could be ‘rare disease’ in 20 years, study says
Hepatitis C may become a “rare” disease in the U.S. in about 20 years, according to a new computer model.…
Read More